Provide support to children and youth with T1DM in Rwanda focusing on quality of care/selfcare and digital health for better patient monitoring and follow up.
Project activities include two tracks:Diabetes care for T1DM:- Specialised diabetes care provided by RDA to all registered children and youth with T1DM in Rwanda, services to be gradually transferred to NCD clinics at district hospitals. Services will include: - Quarterly visits by RDA mobile team to all 40 district hospitals to provide regular diabetes check-up (including screening for complications), diabetes education and distribution of supplies to T1DM children and youth in need.- RDA working along-side hospital NCD staff with the purpose of gradual transfer of knowledge, skills and management of the T1DM patients. - Annual summer camps targeting vulnerable T1DM children and youth and caretakers to enhance diabetes self-management and self-esteem.Quality monitoring and follow up of patients:- Monitoring, follow-up and clinical outcomes for T1DM patients will be enhanced through:- Establishment of an electronic registry of T1DM patients: transferring the paper-based registry to an electronic version, training of data collectors and continuous, systematic data collection of T1DM patients’ data.- Liaison and collaboration with PhD research project using the electronic registry to improve monitoring, follow up and care for T1DM patients (PhD to be funded separately).
- Electronic patient registry established- 40 NCD clinics at district hospitals strengthened to provide quality T1DM care- Three camps for a total of 300 T1DM children and youth and their parents- 1500 T1DM patients trained in self-management- 900 T1DM patients with regular attendance to clinic (e.g. four times per year)- 600 T1DM patients within agreed targets for glucose control- At least six meetings with health authorities / policy makers to discuss project outcomes